The still point of the turning world [text (large print)] / Emily Rapp.

Authors: Rapp, Emily.
Call number: LT 618.92858845 RAP
Publication: Waterville, Maine : Thorndike Press, a part of Gale, Cengage Learning, [2013]
Publication date: [2013]
Subject: Tay-Sachs disease -- Patients -- Biography.
Terminally ill children -- Family relationships -- Biography.
Large type books.
Rapp, Emily -- Biography.
Series title: Thorndike Press large print nonfiction series.
Title: The still point of the turning world [text (large print)] / Emily Rapp.
Edition: Large print edition.
Physical description: 335 pages (large print) ; 23 cm.
Summary note: Like all mothers, Emily Rapp had big plans for her first and only son, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. Then Ronan was diagnosed at nine months old with Tay-Sachs disease. Not expected to live beyond three, Ronan would be stalled at a developmental level of six months. In this story of a mother's journey through grief and beyond it, Rapp shares the wisdom to be gained from parenting without a future.
ISBN: 9781410457349 (hardback)
1410457346 (hardcover)
LCCN: 2012048318
Url for this record:|library/marc/dynix|1432164
Bib No.: 1432164